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Richard Engel's son Henry was born with Rett's disease, a rare genetic mutation making it so that his "physical and mental development aren't on pace with other children." Engel and his wife were utterly shocked upon first hearing the doctor's diagnosis of their infant son in 2017. Henry had previously been diagnosed with Rett syndrome. Expression of enzymes for the usage in food and feed industry with "His condition progressed and hes developed dystonia: uncontrolled shaking/stiffness. Benjamin the grandson of Elvis Presley and . Engel announced his son's failing health in an emotional video on May 31, 2022. Richard Engel Says His Son Henry Has 'Taken a Turn for the Worse' Due to Rare Neurological Disorder, Richard Engel Announces Death of 'Beloved' 6-Year-Old Son Henry, Everything Richard Engel Said About 'Beloved' Son's Journey with Rett Syndrome Before His Death, Richard Engel Celebrates Son's 5th Birthday, Shares Message to All Kids with Rett Condition, Richard Engel's Younger Son, 1, Takes His First Steps as Big Brother Henry Is 'Cheering' Him On, Richard Engel Sends 'Love' to 'Special Needs Kids' amid Coronavirus with Photo of Son Henry, 4, Richard Engel Honors Late Son Henry on His 7th Birthday, Gives 'Big Thank You' for Support, Hoda Kotb Gets Emotional as She Shares Tribute After 'Heartbreaking' Death of Richard Engel's Son, Savannah Guthrie Posts Beautiful Tribute to Richard Engel and Wife Mary After Son Henry's Death, How One Family Found Hope Amid the Pain of Their Son's Rare Brain Disorder: 'There's Going to Be a Better Day', Great-Grandmother, 73, Reunites with Family After 5-Month Battle with Coronavirus: 'So Happy', Criss Angel Gives an Update on 6-Year-Old Son's Cancer Battle During Coronavirus Pandemic, Rett syndrome, a rare genetic neurological disorder, revealing that "school was the only place where. Its hard to say were close. This rare genetic neurological disorder causes severe physical and cognitive impairments. Richard Engel, 48, announced that his six-year-old son Henry has died after a years-long battle withRett Syndrome, an incurable neurological disorder, Engelshared the heartbreaking news in a joint statement with his wife, Mary Forrest, on Twitter Thursday, The couple encouraged those who want to honor Henry's memory to donate to the hospital's Rett Syndrome research. Other families, doctors and advocates for children with disabilities say the disruption caused by COVID is reverberating throughout the entire special-needs community. He had the softest blue eyes, an easy smile and a contagious giggle. Engel joined a session from a convoy in southern Ukraine to share his family's agonizing struggle with Rett Syndrome, which ended in Henry's death at age 6. Engel and Forrest had to watch Henry constantly and stop him from putting his hands in his mouth and scratching his eyes because he could have hurt himself. The institute's Dr. Huda Zoghbi, who studied Henry's mutation, called him "special in so many ways. "I will always remember the twinkle in your eye. ", Engel also spoke to other parents who have children with special needs about how they are coping, recognizing that "Henry's situation is not unique. "All of us are sending our love to Richard, to Mary and to Theo," said co-host Hoda Kotb. Other families can't afford to turn their homes into therapy gyms, and not all community support is strong,' he said. Popular American journalist and author Richard was born on 16 September 1973. California governor is slammed for LEAVING the state for 'personal travel' after declaring an emergency amid severe snowstorm - hasn't shared his schedule for weeks, Elevated level of 'chemical of concern' is found in air near East Palestine: Clear, colorless gas causes skin and respiratory inflammation and excess fluid in the lungs, 'It's my prerogative': Idris Elba HITS BACK at being criticized for not wanting to call himself a 'black actor' after sparking race debate, Plastic surgeon reveals five cosmetic procedures she would NEVER get - from dangerous Brazilian butt lifts to 'unpredictable' nose jobs, The troubled action hero: Tom Sizemore boasted of affairs with Liz Hurley and Paris Hilton (which he had to admit was a lie), attacked his wife actress Maeve Quinian and LA madam Heidi Fleiss - as he battled drink and drugs before his death at 61, Mars-a-Lago!